Be Part of the Cure:
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We are collecting letters from LGSOC patients, caregivers, and advocates. These letters will be bundled and sent directly to pharmaceutical companies whose drugs may have potential for LGSOC. This is your chance to speak up and advocate for research that could save lives.
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Purpose
To amplify the voices of those affected by LGSOC and spark pharmaceutical partnerships that lead to innovative, life-extending treatments by demonstrating the urgency and potential for studying existing drugs in this rare and underserved patient population.
Let your voice be heard
Send your letter (PDF, Word, or in the body of the email) to
[email protected]
Deadline: September 1, 2025
Address your letter: “To the Pharmaceutical Company”
[email protected]
Deadline: September 1, 2025
Address your letter: “To the Pharmaceutical Company”
Need Help?
Here are some guiding questions.
These questions are to help you consider what you might want to write. You do not have to answer each questions, but instead use these questions as a guide.
- What would you want to say to a pharmaceutical company that may have a drug to help treat your disease?
- Why is it important to you that the company partners with researchers to explore using their drug for LGSOC?
- What challenges have you faced with limited treatment options for LGSOC?
- What would it mean to you to have new treatment options?
- How would research and hope for future treatments impact your quality of life?
Example Letters
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Example 1: Patient Perspective
Dear Pharmaceutical Company, My name is [First Name], and I am living with low-grade serous ovarian cancer (LGSOC), a rare and often misunderstood disease. I’ve learned that your company has a drug that might help patients like me, but it has never been studied for LGSOC. I want you to know that we are a strong and hopeful community. We are living with a disease that has no cure and limited treatment options. Please consider working with LGSOC researchers to study your drug. For me and others like me, it could mean more time—time with our families, time without pain, and time to live. Thank you for listening. Your work matters more than you know. Sincerely, [First Name, optional: age, diagnosis year] |
Example 2: Caregiver Perspective
To the Pharmaceutical Company, I’m writing as a caregiver to my daughter, who has been fighting low-grade serous ovarian cancer since she was 28. Watching her navigate a disease with so few options has been heartbreaking. When we heard your drug might have potential for LGSOC, we felt hope. Please don’t overlook this community. Please work with the researchers who are passionate about helping patients like my daughter. We are not asking for miracles—we are asking for science, for study, and for a chance. With hope, [Name] |
Disclaimer
Letters submitted through this initiative will be used solely for the purpose of the Voices of LGSOC letter-writing campaign directed to pharmaceutical companies. We respect your voice and your privacy. If at any time you wish to have your letter removed from the group of letters shared through this project, please email us at [email protected] and we will honor your request promptly.
