Phone In Live

Want to talk to us live during the discussion sessions?
Please call 1 703-844-3231 when prompted.

​*Due to time restrictions, we may not be able to get to all phone calls.

Live Polling

Respond to polling questions in real time! Go to PollEv.com/LGSOC and make your voice count! 

Submit A Comment

Submit a comment using the form. These may be shared during the PFDD meeting and may also be used in the Voices of LGSOC report. All identifying information will be removed prior to publication. Some questions that may be discussed are listed below. Please submit each comment individually.
  • Which LGSOC symptoms have the most significant impact on your life?
  • How does LGSOC affect you on best and on worst days? Describe your best and worst days?
  • What specific activities, that are important to you, that you cannot do at all or as fully as you would like because of LGSOC?
  • How have your symptoms changed over time? How has your ability to cope with the symptoms changed over time?
  • What do you fear the most as you get older? What worries and frustrates you most about your condition?
  • What are you currently doing to manage your LGSOC symptoms?
  • How well do these treatments address the most significant symptoms of your LGSOC?
  • What are the most significant downsides to your current treatments and how do they affect your daily life?
  • Short of a complete cure, what specific things would you look for in an ideal treatment for LGSOC?

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