Additional Information and Resources

It is crucial to understand LGSOC in order to make informed decisions about your care.

 

Where to Learn More

Low-Grade Serous Ovarian Cancer Initiative- Resources and guides are provided on all things LGSOC.

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Let’s Talk About LGSOC – Detailed information about the disease, symptoms, and how it differs from other ovarian cancers.

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STAAR’s LGSOC Overview – Information about LGSOC research and patient advocacy.

 

Find an Experienced Specialist

 

Why It’s Important

Not all oncologists are familiar with LGSOC’s unique characteristics. It’s essential to find a gynecologic oncologist experienced in treating LGSOC.

 

Questions to Ask Your Doctor

How many LGSOC patients have you treated?

What treatment options do you recommend for me and why?

 

Helpful Resources

Foundation for Women's Cancer – Seek a Specialist – Use this tool to find a gynecologic oncologist experienced in treating ovarian cancer.

It’s crucial to specifically ask each doctor about their experience with LGSOC to ensure they are familiar with the disease’s unique characteristics and treatment options.

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Consider Genetic Testing

 

Why Genetic Testing Matters

Genetic mutations, like BRCA1 and BRCA2, can impact your treatment plan and family’s risk factors.

 

Learn More

National Cancer Institute – Genetic Testing Fact Sheet – Comprehensive guide to understanding genetic testing for cancer, including how to discuss testing with your doctor.

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Explore Treatment Options

 

LGSOC-Specific Treatments

Hormone Therapy: Often used as the first-line treatment for LGSOC due to its hormone-sensitive nature.

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Targeted Therapy: Medications that target specific mutations or proteins that promote cancer growth.

 

Learn More

Let’s Talk About LGSOC – Treatment Options

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Clinical Trials for LGSOC – Explore ongoing and upcoming clinical trials specifically for Low-Grade Serous Ovarian Cancer, including eligibility criteria and study locations.

 

Living with LGSOC

Low-grade serous ovarian carcinoma (LGSOC) is a rare, slow-growing cancer. Navigating life with LGSOC involves managing symptoms, treatment side effects, and emotional well-being.

 

Explore strategies to enhance quality of life, including:

• Diet and lifestyle adjustments

• Coping with anxiety and emotional health

• Connecting with a supportive community

 

Connect with Support Groups

There are several reputable support groups for ovarian cancer patients, including:

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Patient-Administered Facebook Groups

• Low-Grade Serous Ovarian Cancer Peer Support - a peer support group for all people with a diagnosis of Low Grade Serous Cancer (Ovarian and Peritoneal).

• Low Grade Ovarian Cancer Women / Caregivers - a peer support group for women diagnosed with LGSOC and their immediate family members or caretakers.

These groups are managed by the community and provide a space for shared experiences and emotional support.

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Organizational-Offered Groups

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• Ovarian Cancer Research Alliance – Support Programs – Offers peer support and mentorship programs.

• CancerCare – Ovarian Cancer Support Groups – Provides professional support services, including counseling and support groups.

• National Ovarian Cancer Coalition – Facilitates online and in-person support communities.

These groups provide valuable emotional support and community connections. You can also read personal stories from others living with LGSOC.

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